Dementia and seizures

Dementia comes with many emotional and physical challenges, and in some cases, seizures can occur. Here, we are exploring why this happens, and what support may be needed.

Dementia and seizures

What is dementia? 

Around 900,000 people in the UK live with dementia, which is a progressive neurological disorder causing symptoms like memory loss and communication issues. Dementia is most prevalent in those over 65, and different types of dementia cause unique symptoms. Every person is affected in their own way, but in most cases, specialist dementia care will eventually be required due to behavioural and physical symptoms like mobility loss.

“While most people think of memory problems when they hear the word dementia, the condition encompasses a range of complex symptoms…”

– Dr Sara Imarisio, Head of Research from Alzheimer’s Research UK

One lesser-known symptom is seizures, which studiessuggest are 6-10 times more prevalent in older people with dementia.

Are seizures common in dementia?

Clinical evidencehas discovered the comorbidity of epilepsy and Alzheimer’s disease, and it is believed dementia andseizuresboth result from damage to cells in the brain which impact its function. While seizures were once considered a symptom of late-stage dementia only, researchersnow believe they can occur in the early stages too, sometimes before memory loss.

A 2020 study suggested that dementia contributes to a twofold risk of developing epilepsy, and vice versa. This is thought to be due to brain shrinkage, or the buildup of proteins amyloid and tau which impact how nerve cells communicate, causing them to behave uncontrollably. Not everyone with dementia has seizures, but those who do may find them frustrating and frightening.

What might a dementia seizure look like?

According to a2021 study, generalised or focal seizures are the two most common in dementia:

  • Generalised tonic-clonic seizurescause people to become unresponsive and possibly convulse, but many epileptic seizures don’t look like this.
  • Focal onset seizuresare what most people with epilepsy experience, and are more common in those with dementia. These may look like brief stints of amnesia, unresponsiveness, or involuntary repetitive motions like chewing – they may be referred to as“silent seizures”.

The confusion that occurs in dementia can sometimes make seizures difficult to recognise, and slower to diagnose and treat. If you suspect you or an older loved one has experienced one or multiple seizures, speak to a GP as soon as possible.

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How to manage dementia seizures in a loved one 

Managing dementia-related seizuresmay require:

  • Making the home safe by removing hazards that could injure during seizures
  • Monitoring anything that triggers seizures
  • Ensuring they take any seizure medications they have been prescribed
  • Keeping track of seizure patterns to inform the GP when they occur
  • Offering reassurance during and after seizures to ease anxiety
  • Taking them to regular medical reviews with neurology specialists or other doctors
  • Clearly communicating seizure patterns with caregivers taking over in your absence

In some cases, seizures can cause cognitive decline to speed up, so taking anti-seizure medications could help prevent this. Other treatments may be available, so you may be referred to a specialist to learn more options.

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Dementia and seizures

Why Home Instead?

A GP or specialist will need to check and treat an older person’s dementia-related seizures. However, while they find the best medications or treatments, you may still need to manage seizures in the meantime, which can be distressing for families.

Professional home care can make this easier, and at Home Instead, our Care Professionals are trained in person-centred dementia care that includes knowledge on how to manage seizures. We use a programme that is City & Guilds Assured, and we are rated 9.6 on Homecare.co.uk. Plus, many of our locations are deemed “outstanding” by the Care Quality Commission (CQC), so you can feel comfortable leaving your older loved one with dementia in our capable hands without worrying about potential seizures.

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