Expert Friedreich’s ataxia care at home from trusted Care Professionals who can help provide the bespoke support needed for anyone living with this challenging condition.
Friedreich’s ataxia (FA) is a condition affecting coordination, balance and speech that is thought to impact 1 in 40,000 people around the world. FA causes physical challenges such as mobility issues, trouble swallowing and impaired eyesight, so at-home care can help to maintain the safety and comfort of older adults with this condition. This might include:
FA is progressive in nature, so home care will eventually be needed to make daily life less stressful, and maintain quality of life.
Friedreich’s ataxia can cause many physical and emotional challenges that will eventually require help from a caregiver. These include:
There is no cure for Friedreich’s ataxia, so at-home care is designed to help manage symptoms and maintain comfort. Care might involve things like applying braces to limbs, facilitating physical therapy or speech therapy appointments, managing co-occurring conditions like diabetes, or post-operative care after surgery to correct skeletal problems.
People with Friedreich’s ataxia (FA) need to see a neurologist around once a year, and will have daily care needs to maintain their preferred routines. While some can manage alone for a time, many people with FA eventually develop scoliosis or foot problems, so help may be necessary to safely move around the home.In addition, an estimated 91% of people with FA experience abnormal eye movements, 30% develop diabetes, and 75% experience heart problems like hypertrophic cardiomyopathy. Symptoms should be monitored by a professional who understands potential complications and can help offer long-term support.If you need help determining whether you or a loved one needs Friedreich’s ataxia care, your GP or a Care Needs Assessment could advise.
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At-home care may be the next step for those beginning to struggle while living with Friedreich’s ataxia. Most people will require a wheelchair on average 10 years after being diagnosed, so the earlier you begin your care journey, the easier it may be to integrate this into your life.Our Care Professionals offer visiting care or live-in care depending on your requirements, and can continue to adapt as your condition develops. We always take time to learn what you struggle with most, and our experienced Care Professionals understand the emotional toll that FA can take, as well as the subsequent need for companionship and a listening ear to support mental health. With our help, you can continue to live independently and confidently at home.
Our Care Professionals are highly skilled and trained to help with the unique combination of needs experienced by people with Friedreich’s ataxia; mobility support, help with dysphagia struggles, monitoring associated diabetes, support with communication, and more.
We also work hard to pair you with a Care Professional who complements your personality and interests, so you always enjoy the time you have with your caregiver.
We are proudly rated 9.6 on Homecare.co.uk, with many of our locations also rated “outstanding” by the Care Quality Commission (CQC). With our experienced Care Professionals, you can be sure you are bringing only the best care into your home, and someone who understands exactly what you need and how you like things done.
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FAQs
Our Care Professionals can assist with mobility challenges, daily activities, and personal care. They also provide emotional support and help manage symptoms like muscle weakness, coordination issues, and fatigue.
Yes, Care Professionals work to ensure a safe home environment by removing hazards, assisting with mobility aids like walkers or wheelchairs, and providing physical support to prevent falls and injuries.
Care Professionals can help to manage medications, monitor for complications like heart issues or diabetes, and coordinate with healthcare providers to ensure the care plan is followed effectively.
Care Professionals can assist with meal preparation, ensuring a nutritious diet, and encourage light, adaptive exercises to maintain strength. They also help with communication tools if speech difficulties arise.
Diane WIlliams , Head of Quality & Standards