What Dementia Is – and What It Isn’t

Dementia is often misunderstood, leading to fear, stigma, and confusion. In this blog, we unpack what dementia truly is — and isn’t.

Let’s face it — the word “dementia” can spark confusion, fear, and sometimes even denial. It’s a topic that many shy away from, often because it’s wrapped in misunderstanding. That’s exactly why Home Instead decided it was time to set the record straight.

We’re cutting through the myths and misconceptions to provide a clear, compassionate understanding of what dementia really is — and what it absolutely isn’t.

So, What Is Dementia?

Dementia isn’t just “forgetting things” or a natural part of ageing — it’s a medical condition. More accurately, dementia is an umbrella term for a range of neurological conditions that affect memory, thinking, behaviour, and the ability to perform everyday activities.

The keyword here is: umbrella. Dementia is not a single disease — it’s a collection of symptoms caused by various disorders that affect the brain.

Think of it like this: if dementia is the symptom, diseases like Alzheimer’s or vascular dementia are the causes.

What Dementia Is Not

Let’s clear up a few common misconceptions:

  • It’s not just forgetfulness.
    Forgetting your keys or mixing up appointment times is normal — we all do it. Dementia involves persistent and progressive memory loss that interferes with daily life.
  • It’s not a normal part of ageing.
    Yes, ageing brains may slow down, but not all older adults develop dementia. Many live well into their 90s with full cognitive abilities.
  • It’s not just about memory.
    Dementia can also affect judgment, mood, communication, and personality. Memory loss is just one piece of the puzzle.

It’s not untreatable.
While there’s no cure (yet), there are treatments and strategies that can help manage symptoms and maintain quality of life.

Types of Dementia: Not All Are the Same

Because dementia is a syndrome, it can come from many underlying conditions. Here are the most common types:

  1. Alzheimer’s Disease
    The most well-known and common form, accounting for around 60–80% of cases. It usually develops slowly and worsens over time, starting with memory issues and later affecting language and behaviour.
  2. Vascular Dementia
    Caused by reduced blood flow to the brain — often after a stroke or series of small strokes. Symptoms can appear suddenly and may include problems with planning, organising, or decision-making.
  3. Lewy Body Dementia
    This type is marked by abnormal protein deposits in the brain. People may experience visual hallucinations, sleep disturbances, and movement issues similar to Parkinson’s.
  4. Frontotemporal Dementia (FTD)
    More common in younger individuals (40s to 60s), FTD affects the front and side parts of the brain, leading to personality changes, poor judgment, and language problems.
  5. Mixed Dementia
    As the name suggests, this is a combination — often Alzheimer’s with vascular dementia or another type. Symptoms can vary widely depending on which parts of the brain are affected.

Busted: 5 Common Myths About Dementia

Let’s put these myths to bed once and for all.

🧠 Myth #1: Dementia only affects the elderly.
While age is the biggest risk factor, younger people can develop dementia too. It’s called Young Onset Dementia, and it can occur in people under 65.

🧠 Myth #2: All memory loss is dementia.
Not true! Stress, depression, medications, and even vitamin deficiencies can mimic dementia symptoms — and many of those are treatable.

🧠 Myth #3: People with dementia have no quality of life.
With the right support, routines, and compassionate care, people with dementia can continue to live fulfilling lives.

🧠 Myth #4: There’s nothing you can do once diagnosed.
Early diagnosis opens doors to medication, therapy, support, and planning. The sooner you know, the more options you have.

🧠 Myth #5: Dementia means your loved one is “gone.”
This one hurts — but it’s not true. They may change, but the essence of who they are often remains, especially with emotional connection and patience.

Why Early Detection Matters

Catching dementia early is a game-changer. Here’s why:

  • Access to treatment and clinical trials
  • Better planning for future care
  • Time to make meaningful memories
  • Support for the whole family

At Home Instead, we train our caregivers to spot the signs of dementia early — and support families every step of the way.

How Home Instead Supports Families

When dementia enters the picture, families need more than just information — they need guidance, empathy, and a personalised plan.

Here’s how we help:

✅ Home Instead provides compassionate, dementia-trained caregivers who support independence at home.
✅ We help families navigate next steps with dignity and care.
✅ Our care plans are tailored to the individual, not just the diagnosis.

💡 Real-life example: A client’s father was recently diagnosed with vascular dementia. With Home Instead providing in-home support and helping the family understand what to expect, the father remained in his home — safe, supported, and still able to enjoy Sunday dinners with his grandchildren.

Final Thoughts

Dementia doesn’t define a person. It doesn’t erase their story, their dignity, or their capacity to be loved and supported.

At Home Instead, we’re here to walk with families through every step of the journey — offering compassionate care, tailored plans, and the reassurance that you’re not alone.

If someone in your life is facing dementia, reach out. Don’t navigate this journey alone. Let’s take the first step — together.