Finding Dementia Support in West Sussex: You're Not Alone

A guide to local dementia charities, support groups and practical help for people living with dementia and their families across Worthing and the wider West Sussex community.

Receiving a dementia diagnosis, whether for yourself or someone you love, can bring a mixture of emotions. There may be relief at finally having some answers, but also worry, uncertainty and plenty of questions about what happens next.

Where do you turn for advice? What support is available locally? How can you help someone continue living well with dementia? And who can you speak to when things feel overwhelming?

These are questions many families find themselves asking.

The reassuring news is that you don’t have to navigate dementia alone. Across West Sussex, there are dedicated charities, organisations, community groups and care services offering information, practical guidance, emotional support and opportunities to connect with others who understand.

At Home Instead Worthing & Steyning, we understand how important it is for families to know where to turn. That’s why we’ve brought together some of the valuable dementia support services available across our local communities.

Taking the First Steps After a Dementia Diagnosis

A dementia diagnosis doesn’t mean that life suddenly stops. Many people continue to enjoy their hobbies, maintain friendships, spend time with loved ones and live fulfilling lives for years following a diagnosis.

However, understanding the condition and finding the right support early can make a real difference.

If you or a family member has recently received a diagnosis, some helpful first steps include:

  • Speak to your GP or memory assessment team. Ask about the diagnosis, any recommended treatment, follow-up appointments and support services.
  • Learn about the condition. Understanding the particular type of dementia can help you prepare for changes and find ways to support everyday life.
  • Explore local support groups. Meeting others in similar situations can offer reassurance, friendship and practical advice.
  • Consider future planning. This might include discussing care preferences, finances, Lasting Powers of Attorney and how someone would like to be supported as their needs change.
  • Remember that carers need support too. Looking after your own wellbeing is just as important as supporting the person you care about.

You don’t need to have everything figured out immediately. Taking one step at a time is absolutely fine.

Where to Find Dementia Support in West Sussex

There are some wonderful organisations working throughout West Sussex to support people affected by dementia. Whether you’re looking for professional advice, social activities, help with caring responsibilities or simply someone to talk to, the following services are a good place to start.

Alzheimer's Society – Dementia Advice and Support

Alzheimer’s Society is one of the UK’s leading dementia charities, providing information, guidance and support to people living with dementia, their families and carers.

Their Dementia Connect service offers personalised support, helping people understand their diagnosis, explore available services and navigate the challenges that can arise.

You can access advice whether you’re concerned about memory changes, have recently received a diagnosis or have been supporting someone with dementia for some time.

How they can help:

  • Information about different types of dementia and symptoms.
  • Emotional support and practical advice.
  • Guidance on planning for the future.
  • Help finding relevant local services and support.

Contact: 0333 150 3456

Website: https://www.alzheimers.org.uk

Alzheimers society

Dementia Support at Sage House – Tangmere

Located near Chichester, Sage House is a dedicated dementia hub run by the charity Dementia Support.

It brings a range of dementia services together under one roof, creating a welcoming place where people living with dementia and their families can access advice, activities and practical assistance.

One particularly valuable service is its Wayfinding support, which helps families understand their options and find the services most appropriate for their circumstances.

Sage House also provides opportunities for meaningful activities, social connection and practical advice about living well with dementia.

How they can help:

  • Free information, advice and guidance through their Wayfinding service.
  • Dementia-friendly activities and opportunities to socialise.
  • Support for family members and carers.
  • Advice on adapting everyday life and maintaining independence.

Contact: 01243 888691

Website: https://www.dementiasupport.org.uk

Sage house

Carers Support West Sussex – Supporting Those Who Care

When someone develops dementia, the people around them often take on additional responsibilities, sometimes without even recognising themselves as carers.

You might be a husband or wife helping your partner through daily routines, an adult child supporting a parent, or a friend checking in regularly.

Carers Support West Sussex is a local charity dedicated to helping unpaid carers access the information, practical guidance and emotional support they deserve.

They offer support groups, wellbeing advice and opportunities to connect with others who understand the realities of caring for someone.

How they can help:

  • Emotional support and someone to talk to.
  • Advice about caring responsibilities and available assistance.
  • Local carers’ groups and opportunities to connect.
  • Information about maintaining your own health and wellbeing.

Contact: 0300 028 8888

Website: https://www.carerssupport.org.uk

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Age UK West Sussex, Brighton & Hove – Dementia Activities and Respite

Age UK West Sussex, Brighton & Hove provides a range of services designed to help older people remain independent, socially connected and supported.

Their dementia services include Daybreak Respite, offering meaningful activities and social interaction for people living with dementia while giving family carers an opportunity to take a break.

These services can be particularly helpful for families looking for regular activities, additional support or opportunities for their loved ones to spend time with others.

How they can help:

  • Dementia-friendly activities.
  • Day support and social opportunities.
  • Respite opportunities for family carers.
  • Information and advice about ageing and support services.

Dementia services contact: 0800 019 1310

Website: https://www.ageuk.org.uk/westsussexbrightonhove

Age UK logo

Dementia UK – Specialist Advice from Admiral Nurses

Sometimes families need more specialist guidance, particularly when dementia symptoms become more complex or caring responsibilities begin to feel overwhelming.

Dementia UK provides access to Admiral Nurses, specialist dementia nurses who offer practical, clinical and emotional support to families affected by dementia.

Their national helpline can help with questions about changes in behaviour, communication, daily care and navigating difficult decisions.

You don’t need to wait until you’re struggling to ask for advice.

Admiral Nurse Dementia Helpline: 0800 888 6678

Website: https://www.dementiauk.org

Dementia UK

West Sussex County Council – Care and Support Information

West Sussex County Council provides information about dementia support, adult social care and services available across the county.

Its Connect to Support resource can help families explore practical assistance, understand care options and find information about maintaining independence.

If someone living with dementia needs additional help with everyday activities, they may be eligible for a care needs assessment. Unpaid carers can also request a carer’s assessment to explore what support might help them.

Website: https://www.westsussex.gov.uk/social-care-and-health/keeping-healthy-and-well/dementia-support/

west sussex council

The Importance of Staying Connected: Dementia-Friendly Community Groups

While professional advice and practical support are important, so is having somewhere to go, something to look forward to and people to share experiences with.

Dementia can sometimes lead to social isolation, not only for the person living with the condition but also for their family carers.

Community groups, dementia cafés and social activities can offer opportunities to maintain friendships, enjoy familiar interests and meet people in similar circumstances.

And sometimes, simply being somewhere you feel understood can make all the difference.

Finding Other Dementia-Friendly Activities Near You

There are also other community initiatives, support groups and dementia-friendly activities taking place across Worthing, Littlehampton, Shoreham, Chichester and the wider West Sussex area.

The West Sussex Dementia Community website is a useful place to explore information, local connections and opportunities to get involved.

Visit: https://www.westsussexdementia.org.uk

You can also contact your local library, community centre or one of the charities listed above to ask about groups taking place near you.

Music & Memory Dementia Café in Angmering

One local initiative we’re particularly proud to be involved with is the Music & Memory Dementia Café, held at St Margaret’s Church in Angmering.

Created in partnership with members of the Arun Dementia Alliance, including Home Instead, St Margaret’s Church and Ayton House Care Home, the café offers a free, welcoming and dementia-friendly environment for people living with dementia and their families.

What began as a monthly gathering has grown into a thriving community initiative, and we’re delighted that the café now takes place twice a month.

When: The first and third Thursday of each month, 10am–12pm.

Where: St Margaret’s Church, Angmering.

Our first Thursday session brings everyone together for live music, singing, conversation and guest speakers sharing helpful information.

The third Thursday focuses on providing additional opportunities for connection and support. Volunteers spend time enjoying activities with people living with dementia, while family carers have the chance to meet, chat and build friendships with others who understand their experiences.

There is also a private space available for carers who would like to speak with professionals about any concerns they may have.

And, of course, there’s always tea, coffee, refreshments and a warm welcome.

You don’t need to have attended before, and there’s no pressure to take part in anything you’re not comfortable with.

Whether you’re looking for advice, companionship or simply a friendly morning out, we’d love to welcome you.

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Specialist Dementia Care in the Comfort of Your Own Home

For many people living with dementia, home is more than just a place to live. It’s somewhere filled with familiar surroundings, treasured memories and established routines that can provide comfort and reassurance.

At Home Instead Worthing & Steyning, we believe that a dementia diagnosis shouldn’t mean having to give up the independence and familiarity of home.

All of our Care Professionals receive specialist dementia care training, giving them the knowledge and understanding to provide compassionate, personalised support that adapts to each individual’s needs.

Whether it’s help with everyday routines, personal care, preparing meals, companionship or getting out into the community, our Care Professionals are there to provide reassurance and practical support while encouraging independence wherever possible.

With visits lasting a minimum of one hour, we take the time to build meaningful relationships, understand each person’s preferences and provide care that never feels rushed.

Our aim is simple: to help people living with dementia remain safe, comfortable and independent in the place they know and love for as long as possible, while giving their families peace of mind.

If you or someone you love could benefit from additional support at home, our friendly local team would be happy to discuss how we can help.

Learn more about our specialist dementia care at home

You Don’t Have to Face Dementia Alone

A dementia diagnosis can change many things, but it doesn’t take away someone’s individuality, their relationships or their ability to experience joy and meaningful moments.

And for families, having the right information and people around you can make the journey feel a little less daunting.

Whether you’re looking for professional guidance, a friendly local support group, advice about caring for a loved one or help at home, there are people and organisations throughout West Sussex ready to support you.

You don’t have to know all the answers. You just need to know that help is available.

At Home Instead Worthing & Steyning, we’re passionate about helping people living with dementia and their families feel connected, understood and supported within their communities.

If you’d like to learn more about our dementia care services, explore how care at home could help your family, or find out about our Music & Memory Dementia Café in Angmering, please get in touch with our friendly local team.

We’re always happy to have a conversation.

Because nobody should have to navigate dementia alone.